This time last year I was preparing to go see my bestfriend get married in Pennsylvania. He wed his beautiful wife on May 26th and I drove home May 27th. The next morning my world was completely different. Here is what I wrote one year ago on facebook to notify friends and family what had been going on for a week:
"Everyone has been sending me messages about whats going on so
here goes:I've been feeling like I've been on a boat for the last 1 1/2
weeks. It makes me not able to walk around without help or support. I
can't stand or sit up to much or it comes back. If the dizziness stays
while i try to walk or sit up I will pass out. Last week the first
doctor said i just had a virus that was Wednesday and gave me meds to
help with the dizziness and nausea..well that only put me to sleep for
hours and didn't help. By Saturday morning I couldn't move my lower half
without having excruciating pain. All of my joints hurt, so this time
we went to the ER. They started me on a IV fluids and gave me zofron
to help with the nausea and took a bunch of blood work and ran an EKG to
check my circulation. They sent me home with zofron and patches to put
behind my ear to help with the dizziness. They said I was just very
dehydrated from being sick earlier in the week. I started feeling
normal again when I got home, but I did what the docs said and took it
easy. On Sunday I started to feel the symptoms start coming back but
not as hard as they were. I woke Monday feeling like I would try to go
to work. I got up and dressed and took Seth to school. On my way home,
which is only a few blocks away) I started to feel like the I was going
to black out. I got Josh on the phone to talk to me to make sure i
made it home again safely, and when I reached my drive way I did end up
blacking out Lily was there to talk me back. It was the scariest
moment in my life because at this point it is my kids are in danger of
what is going on with me. I had my mom take me to the ER again. They
gave me more fluids and pain meds for my joint pain. They ran another
EKG, MRI, CAT Scan and more blood work. Everything came back fine.
They did send of blood work to check for Lyme Disease which I won't get
those back. They then diagnosed me with Vertigo and gave me a bunch of
new meds. Its now Thursday and I still feel like on a boat. Yesterday I
know for sure I passed out at least 2 times, however I tend to pass out
and not know that I do. The meds are making my eyes dry really bad so I
can't wear my contacts because they are making my eyes irritating. It
also makes my vision so blurry at moments that I can't see my phone for
texts but that comes and goes. The pain is gone for the most part, but I
walk around like I'm a drunk and can't do normal things like taking a
shower, my strength is very weak and I become very shaking when trying
to focus on doing a any tasks, even something so easy as pouring a
drink. I'm not allowed to drive anymore and I've been pulled out of
work.
Today I"m going to see my ENT doc Dr. Dorofi to see
if he can give me some answers because just from our phone call the
other day he doesn't think its Vertigo with the symptoms I'm having.
Josh
has been my rock through all this. Literally catching me as I fall,
holding my had for lab work, and helping me without making me feel like
I'm losing all control. My mom and brother have been there to help to
keep my spirits up by helping me laugh through all of this and helping
drive me places. And for all the texts and messages here on FB I thank
you because it has been helping as well. I'll keep everyone up to date
as to what is going on. I'm sorry to those I haven't called in awhile
or sent messages to, but its been very hard to do. Even typing all of
this has been very hard to do. So thank you again for patience,
thoughts and prayers. You all have really lifted up my spirits through
this very frustrating time. Its been very hard not to fall into a
depression state with all of this, but you all have helped me pull
through."
Wow, how much a year has changed. I'm still dealing with my symptoms, but I've been having more good than bad days, which is awesome. I'm pushing through and moving forward trying to reclaim my life. I have really awesome friends and a wonderful family who have been there every step of the way.
Now, one year later, I'm heading out on my biggest trip since I was diagnosed. I'm heading to SC to see my grandparents and dad. Its been well over a year since I have them and I've missed them a lot. I'm excited but nervous with traveling. I'm pulling at my faith to get me through this weekend. I'm going to be pushing myself the hardest that I have in over a year. I can't wait to get on the road tonight. Who knows? A trip like this could be what pushes me back to 100% normal. Fingers and toes are crossed that I don't regress and I can come out of this trip at least feeling how I feel now. Here's to safe travels :-)
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