Monday, May 12, 2014

"We Are Giants"~Lindsey Stirling

Today is day 4 of no symptoms.  Its been such an amazing feeling, strange but oh so wonderful.  Since my last post, I've had a lot people contact me with well wishes which I appreciate, but also they have sent a ton of questions.  I've compiled the most frequent so here goes:

1.  Did I use any medications?  Sort of.  I only used Meclizine to help with my nausea and Valium some nights to help me relax to be able to sleep.  In the beginning I did try various medications, however none helped.  A lot of the "suggested" meds that help some people would not work for me because I have adverse reactions to them.  I very rarely use any of my meds unless I absolutely had to.  

2.  Who helped diagnose me?  The first person was my ENT specialist.  This guy had performed surgeries on my children and he also worked side-by-side with the doctors I work for so I trusted his opinion.  The second was a neurologist who pretty much stated the same as the ENT.

3.  How long have I suffered from MdDS?  Two years as of May 28th.  Two hard long years.  The first year was very tough, but I started to push myself harder and within the last year I started to have more good than bad days.

4.  What did I do to lose my symptoms?  This question is very hard to answer.  The problem is I really don't know if it was one thing or another that I did.  I literally woke from a nap and the rocking was gone and has stayed gone now for a few days.  I did try vestibular rehab and I continued to work on the exercises I learned.  I walked a lot, even if I didn't want to.  I basically did different things to try and trick my brain into thinking I was doing something different.  I found coping mechanisms like listening to music when I felt anxiety.  I practiced over and over again to read again because books always helped me leave the world I am in and jump into another place & time.  I pushed myself on my good days, and laid low on my bad days.  Most importantly, I stayed positive.  When I couldn't stay positive I had an amazing husband, mom, and family who helped me stay positive.  I got to a point that I had to laugh at myself.  (I'm not saying this disorder is a joking matter, but I have to find humor or I'll lose it).  

5.  Do you think you are in remission?  I have no idea.  I hope that I am.  I hope this is the end of this ordeal.  But I am cherishing every day that I am given symptom free.  I know what to expect if it comes back and I know what I need to do to handle the emotions that come with it.  

6.  What is your current playlist now that you are "rockin" out and having fun?  I LOVED THIS QUESTION!   Right now its a total mix of different music.  A little country, some hip hop, lots of rock and pop.  Music that I can blare and dance around to.  I can't write all of them but here are few:
"Shatter Me"~Lindsey Stirling feat Lzzy Hale, "Play It Again"~Luke Bryan, "This is How We Roll"~Florida Georgia Line, "Look After You"~The Fray, "Alright"~Darius Rucker, "The Walker"~Fitz & The Tantrums, "Can't Hold Us"~Macklemore & Ryan Lewis, "Don't Stop Me Now"~Queen, "This Close"~Flyleaf, "Love Bites [So Do I]"~Halestorm, "Whistle"~Flo Rida, "Talk Dirty"~Jason Derulo and so many more.  

I think I got most of the questions, I hope all my fellow MdDSers get a chance to feel what I have felt these last few days.  I'm grateful for what I've gotten to experience and I hope it stays this way.  
Thank you for all the support.  I will continue to write about my experiences and how things will continue day-to-day.
~Sara

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